Too many rare disorders cause patients not to find the help they need.
With hundreds of thousands of rare disorders it is not surprising that so many doctors have never heard of Chiari or syringomyelia. But where does that leave the patients? In many cases, they must...
View Article2012 Conference Videos
ASAP has been Pushing the Envelope for almost 25 years. In 1989 ASAP held the first conference for individuals with syringomyelia and Chiari malformation. That meeting in Colorado Springs was a...
View ArticleChronic Pain and the Holidays
Last month ASAP Outreach webinar dealt with Chronic Pain and the Holidays with Dr. Lance LaCerte. If you missed this, just click on the link below. click here to watch webinar
View ArticleChiari Awareness Comes in all forms
For 25 years ASAP has been spreading awareness, education, support and raising funds for research for syringomyelia and Chiari malformation and related disorders. Through an unfortunate situation...
View ArticleExhibitor & Sponsorship Opportunities
The American Syringomyelia & Chari Alliance Project (ASAP) is a national, non-profit 501(c)(3) organization that serves more than 250,000 Americans affected by the debilitating neurological...
View ArticleChiari and Syringomyelia
Have you ever wondered why Chiari is capitalized and syringomyelia is not? It is not grammatically correct to capitalize the names of disorders or diseases. However Chiari malformation was named after...
View ArticleRecycling
Recycling is a requirement in many cities. But have you ever considered recycling unused medication or old medical equipment? We know that we should not keep medication around that we no longer use....
View ArticleHow to Become a Member of ASAP
Membership in the American Syringomyelia & Chiari Alliance Project is free. Request a free information package and sign-up for the newsletter. That's all it takes. Not sure if you want to be a...
View ArticleChildren with SM/CM
Over the years I have often been told by adults that they did not realize daily headaches were abnormal. They were hesitant to share their symptoms with others for fear of being different or causing...
View ArticleFirst Look at this year’s agenda
The following is a list of speakers who are confirmed to attend ASAP’s Chiari & Syringomyelia Conference July 24-27, 2013 in Los Angeles, California. Speaker--Facility--Topic Farbod Asgarzadie,...
View ArticleASAP’s Chiari & Syringomyelia Conference Children’s Program
Annie Chapman, ASAP Board Member and Chair of the Conference Youth Program has been diligent working with volunteers to develop a program that is sure to captivate children ages 6-16. During our annual...
View ArticleSwing Fore The Cure 2013
Swing Fore the Cure Charity Golf Tournament Help raise awareness about Chiari malformation and syringomyelia while enjoying a round of golf at the prestigious Edgewood Golf Club. Event Host: Melissa...
View ArticleTOPICS TO BE COVERED AT THIS YEAR’S CONFERENCE
Chiari Malformation and Sleep Apnea Spinal Syringomyelia Anterior Pathologies and Chiari I Malformation Effectively Managing your Weight and Food Choices for Health Headaches: Diagnosis and Treatment...
View Article2013 Conference Poster
click here to view, download and print a copy of the 2013 conference poster. Share it with your doctor, pain/therapy center, etc to let others know about the upcoming meeting in Los Angeles!
View ArticleOne of Those Happy Stories
By: Sami Robbins When I think of a happy story I think of a fairy tale, the whole the guy gets the girl and they live happily ever after shebang. Well not this one, all though this is a happy story....
View ArticleKIDS For A Cure Club Summer Newsletter
I am excited to introduce myself as a new volunteer with ASAP and that I will be chairing the Kids For A Cure Club. I live in Kansas with my husband, Kevin, and our four children: Christian (16),...
View ArticleGiving Pain A Name
Here are some words to help when trying to describe your pain to you doctor. Achy – if a part of your body feels achy, you feel a pain there that is continuous but not very strong Acute- used for … MORE →
View ArticleToo many rare disorders cause patients not to find the help they need.
With hundreds of thousands of rare disorders it is not surprising that so many doctors have never heard of Chiari or syringomyelia. But where does that leave the patients? In many cases, they must...
View ArticleChronic Pain and the Holidays
Last month ASAP Outreach webinar dealt with Chronic Pain and the Holidays with Dr. Lance LaCerte. If you missed this, just click on the link below. click here to watch webinar
View ArticleChiari & Syringomyelia
Have you ever wondered why Chiari is capitalized and syringomyelia is not? It is not grammatically correct to capitalize the names of disorders or diseases. However Chiari malformation was named after...
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